Hillary Krzywkoski: Different, Not Less

An Autistic parent has every right to gestate and birth their child without being abused by *any* birth worker. A pregnant Autistic has every right to self expression, caring and nurture, nutrition and health resources for as healthy a pregnancy and birth as possible. A pregnant Autistic has a right to *informed consent*. An Autistic parent has every right to structure their own home how they need in order to parent successfully, they also have every right to determine their sexuality and fertility, they have every right to privacy and fulfillment of family life without harassment, bullying, and shame.

Our Autistic History (Month)

I am an emerging writer and artist with a story to tell about my autistic family’s past struggles. My husband and I have faced adversity when in the formative years of building our family, beginning with our marriage and the conception and birth of our first child, marking a years long struggle for parental autonomy, free from bullying and abuse. I have sought healing through my art and writing this last decade, and have entered my narrative into public discourse via the arts. I have been fortunate to have my work circulated recently at the 2017 Ruderman Foundation Inclusion Summit. I am speaking out against abuse of autistic mothers and fathers. Much of the abuse begins on the home front– through our extended familial relationships, to be recognized and respected as a competent and worthy parent, to be allowed to be fertile and strong, to be allowed a legacy. I…

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When Assistive Technology Breaks

Some of you in my personal network know that today a tragedy occurred: my iPad died. Because I've had difficulty backing up data on iCloud (I have poor executive functioning and *autistic inertia* to thank for that), much of my recent work--8 months worth-- is likely gone, though I'm holding out hope that most, if …

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Why Vasili Arkhipov should matter to you.

Cussin' and Discussin'

Most people have never heard of Vasili Arkhipov, but it’s quite likely we all owe our existence to him.

Vasili_Arkhipov Vasili Arkhipov, a true hero unrecognized in his lifetime.

He was in the Soviet military during the Cold War.  While serving aboard a submarine, he witnessed death and suffering from radiation during a nuclear accident.  This had a profound impact on him.

He played a role in the Cuban Missile Crisis that changed the world in ways the Americans were not even aware of until relatively recently when his deeds came to light.

The Americans didn’t know that some of the submarines they were dealing with during the Cuban Missile Crisis were armed with nukes.

The Soviets in these submarines were suffering extreme physical and mental deprivation that was affecting their judgement.  They were overheated, dehydrated, exposed to high levels of carbon dioxide, going without food, and being bombarded by…

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In Celebration of Autistic Motherhood

Autism and Expectations

Unlike unicorns and dragons and mermaids, autistic mothers are real. We don’t get a lot of media-representation, we don’t seem to fit the stereotypes, but we exist.

Motherhood and autism brings to my mind the scent of my children as they lay in my arms as babies. Just the two of us, alone in the dark. Like a warm blanket of safety and connection. There was no end to me, and no beginning to them. We were whole.

It makes me think of how that changed. How each of them grew and blossomed and unfurled their branches, in new and beautiful patterns. It reminds me of the first time each of them told me something I didn’t know. How powerful learning from your own child is.

It makes me think of those times when I put my sensory needs to one side. Those times were hard, but I would always…

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Honoring autistic poets for Poetry Month & Autism Awareness Month – guest blog post by Hilary Krzywkowski

My gratitude to Trish Hopkinson for putting this on her blog!

Trish Hopkinson

Many poets may not know that April is also Autism Awareness month. Most Autistic adults are anxious the whole month through due to the high volumes of triggering internet content, most of which violates the privacy of autistic children and advocates for child abuse thinly masked as therapeutic or “tough love” interventions (also ableist trolls cruising on Facebook and Twitter). You might see memes on Facebook with a blue background, or a blue puzzle piece which reads: “Light It Up Blue for Autism Awareness Month.” That right there is all about a problematic organization called “Autism Speaks.” You might also see “#RedInstead” which is an #ActuallyAutistic effort to loosen the foothold Autism Speaks has on the autistic conversation space.

By the way, I have to share a video with you–THE Autism Speaks video we discuss every year in April (you’ll see why this organization is triggering and terrible).

Where my…

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National Poetry Month Featured Poets

  ### N.I. Nicholson is a writer, editor, and activist from Central Ohio. As an editor with Barking Sycamores and the NeuroQueer Books imprint of Autonomous Press, he focuses on bringing works by neurodivergent, queer, and disabled writers into print or digital media. In July 2016, he graduated with an MFA in Creative Writing from …

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